Where the System Ends, CAA Begins. We Built the College We couldn't find. CAA Story #5 Kim Rains
DeAnna Pursai • March 23, 2026
Kimberly was born in May 1978. She was a beautiful baby but something seemed off so testing was done and it was determined that she had Down syndrome. Testing also revealed she had a heart defect with a hole between chambers and a valve that didn’t work properly. This was all new to us.
She was doing well so doctors decided to wait to let her grow bigger before doing heart surgery to repair the defects. We waited about 3 years and finally had open heart surgery at Stanford Children’s Hospital. The heart surgery went well but there was scaring below the vocal cords in her air way which required a Tracheostomy Tube below her vocal cords to allow outside air to & from her lungs. The Trach tube required suctioning to remove mucus from her airway and her lungs.
But as Kim grew and made friends in the neighborhood and at early intervention school she learned she loved to dance and perform for the family and for an audience. She thrived when dancing in class, when practicing and when performing. She was a regular dancer at the Alice Porter Dance Studio in San Jose.
She taught us, her parents, what she could do. We never said “you can’t” or “You won’t”. I would urge parents to use positive words when speaking to their children. She learned sign language to help communicating with others and her teacher. She learned to cover her trach with her finger to force air through her vocal cords to speak out loud.
When teaching Kim how to ride a two wheeled bike she had difficulty with balancing. We tried everyday for a long period of time. We eventually found a three wheeled recumbent bicycle. She could ride that bike right away, and loved it.
With her medical issues, we ended up with a trip to see a specialist in Salt Lake City, Utah and several trips to Cincinnati, Ohio.
Dr. John Langdon Haydon Down (1828 – 1896) was a British physician well known for his work & description of the genetic condition “Down syndrome” which he originally classified in 1862. He is also known for his work in social medicine and as a pioneer in the care of mentally disabled patients. It is too bad he didn’t have a different last name or a different way to identify the syndrome. For many of our children there is so much more “Up” and not so much “Down”.
Kim joined several dance classes and used sign language for the church choir.
Once we discovered College of Adaptive Arts there were several classes Kim wanted to take part in. She loved her new friends and brought several existing friends to join her in classes. She thrived in dancing, acting, practicing and learning new things. She led practice sessions at various times in several classes.
The College of Adaptive Arts has been a great resource for Kimberly and for us to help and enable Kim to learn, grow and thrive in many areas. She loved to perform in public and on stage. CAA offers many types of learning scenarios and learning environments.
It can be good to consider which classes are available and join those that could turn out great for your child. The sky is the limit. The College of Adaptive Arts is a lifelong learning environment.
Thank you to Pam and DeAnna for your vision and for your follow-through. Thank you to all the current leaders for their work and dedication.
CAA has been a blessing to us in so many ways.
She was doing well so doctors decided to wait to let her grow bigger before doing heart surgery to repair the defects. We waited about 3 years and finally had open heart surgery at Stanford Children’s Hospital. The heart surgery went well but there was scaring below the vocal cords in her air way which required a Tracheostomy Tube below her vocal cords to allow outside air to & from her lungs. The Trach tube required suctioning to remove mucus from her airway and her lungs.
But as Kim grew and made friends in the neighborhood and at early intervention school she learned she loved to dance and perform for the family and for an audience. She thrived when dancing in class, when practicing and when performing. She was a regular dancer at the Alice Porter Dance Studio in San Jose.
She taught us, her parents, what she could do. We never said “you can’t” or “You won’t”. I would urge parents to use positive words when speaking to their children. She learned sign language to help communicating with others and her teacher. She learned to cover her trach with her finger to force air through her vocal cords to speak out loud.
When teaching Kim how to ride a two wheeled bike she had difficulty with balancing. We tried everyday for a long period of time. We eventually found a three wheeled recumbent bicycle. She could ride that bike right away, and loved it.
With her medical issues, we ended up with a trip to see a specialist in Salt Lake City, Utah and several trips to Cincinnati, Ohio.
Dr. John Langdon Haydon Down (1828 – 1896) was a British physician well known for his work & description of the genetic condition “Down syndrome” which he originally classified in 1862. He is also known for his work in social medicine and as a pioneer in the care of mentally disabled patients. It is too bad he didn’t have a different last name or a different way to identify the syndrome. For many of our children there is so much more “Up” and not so much “Down”.
Kim joined several dance classes and used sign language for the church choir.
Once we discovered College of Adaptive Arts there were several classes Kim wanted to take part in. She loved her new friends and brought several existing friends to join her in classes. She thrived in dancing, acting, practicing and learning new things. She led practice sessions at various times in several classes.
The College of Adaptive Arts has been a great resource for Kimberly and for us to help and enable Kim to learn, grow and thrive in many areas. She loved to perform in public and on stage. CAA offers many types of learning scenarios and learning environments.
It can be good to consider which classes are available and join those that could turn out great for your child. The sky is the limit. The College of Adaptive Arts is a lifelong learning environment.
Thank you to Pam and DeAnna for your vision and for your follow-through. Thank you to all the current leaders for their work and dedication.
CAA has been a blessing to us in so many ways.
Ravinder has done *so much* to Move the Mountain for College of Adaptive Arts :)
Jonathan strives to be an NFL Cheerleader one day.
When Samuel Hinojosa first discovered his passion for videography and the performing arts, a passion he says is in his genes because he has family who are also in the arts, participating in theater productions and expressing himself through dance became a part of his daily routine. But when he turned 22, he suddenly aged out of the programs he had come to love, leaving a gap in both his routine and his creative outlet. That’s when a chance meeting completely changed his life. Samuel was in an Angels on Stage production when he just so happened to meet DeAnna Pursai and Dr. Pamela Lindsay in the audience. Realizing he was about to age out of Angels on Stage, they encouraged him to explore the opportunities available to him at CAA. Their guidance led him to finding a new beginning. At CAA, Samuel quickly found a place where he could continue to grow creatively. He enrolled in videography, acting, and dance classes, reconnecting him with his passion for performing. After taking many performing arts classes, Samuel started exploring what other classes CAA had to offer. He has joined the CAA Go Green Climate Action Class, where he did a phenomenal presentation on UNESCO and how climate change is impacting his native roots community in Mexico. Now in his second semester at CAA, Samuel has expanded his interests beyond just the stage and production lens. He’s developed an interest in bodybuilding and nutrition, exploring what those classes can teach him and how he can use that new confidence to improve his life. CAA’s supportive environment has allowed Samuel to continue exploring his passions, while also discovering new ones. It doesn’t matter if he is behind the camera, performing, or focusing on his health and fitness goals, CAA is constantly pushing Samuel to try new things and grow. For Samuel, CAA is not just a place for him to take classes, it is a community where he can express himself, try new things, and keep moving forward. — Written by Nina Pal Volunteer
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